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Patience is a sometimes misunderstood virtue.When we at the Aphasia Center of Innovative Treatment define patience, we consider it to be within the context of the process of improvement.This simply means that an aphasia patient and caregiver must be patient in understanding that the process takes time to work properly.It most emphatically does NOT mean that the aphasia patient and caregiver should be passive during periods of little or no progress.On the contrary, both the aphasia patient and caregiver must always and every day aggressively work the protocols and materials dictated by their progress.It is time consuming, difficult, and demands a daily dedication to the process, but with patience and an understanding that the eventual goal of a New Normal Level of Communication is achievable, plateaus will be busted and progress will be made.
Support Group of the Month
Our Support Group of the Month is the Coffee and Conversation Group at The Stroke Center at North Memorial in Minneapolis, MN.The StrokeCenter has been providing specialized programming for patients with aphasia since 2000. They offer three programs: Speak Easy ( a ten week class for stroke survivors with aphasia and their friends/family), The Intense Aphasia Program (3 1/2 hours of therapy per day for three weeks), and Coffee and Conversation. The Coffee and Conversation Group meets each Monday morning from and is run by volunteers who are stroke survivors with aphasia. Most people in the group have been participants in Speak Easy or the Intense Aphasia Program.While caregivers occasionally participate, each Monday 8-15 members of this group get together in a social setting to maintain their relationships and camaraderie. Topics of conversation at the Coffee and Conversation Support Group reflect the wide range of interests of the members and give them an excellent opportunity to continually practice what they have learned in therapy.
Patient of the Month
This month we are featuring Gail Becker, a member of the Coffee and Conversation Group. She suffered a stroke in November, 2005. Since that time she has diligently sought every opportunity to maximize her recovery. With some initial assistance from her ex-husband they sought services from The Stroke Center and North Memorial when they were not pleased with the therapy she was receiving.Not only has she never missed a single therapy session in a year, she has NEVER failed to return a home assignment! She participated in Speak Easy and successfully spoke to the group for the Spring Social in May, 2006. She has participated in the Intense Aphasia Program twice and also attends Coffee and Conversation. On top of all that, she has proven that she can live independently using e-mails and a telephone assistance program for correspondence. She consistently demonstrates a humble and optimistic attitude, which has helped in her progress from moderately/severe to mild Wernickes aphasia in under a year.Gail plainly demonstrates the kind of aggressive patience that drives successful patients forward.
Description of Simply Smart Aphasia Therapy (SSAT)
By now, those of you who have read one or more of our monthly newsletters realize that Simply Smart Aphasia Therapy is neither a simple nor simplistic approach to the treatment of aphasia.While the protocols are written to be as easily understandable by laypeople as we can make them and the materials are built to be flexible and able to cover a multitude of specific treatment situations, the continual practice and the single-minded focus demanded for successfully reaching an aphasia patient’s New Normal Level of Communication can be daunting.This is why the virtue of patience while working through the process is so necessary.It is easy to understand why some aphasia patients and/or their caregivers reach a point in the rehabilitation process where they want to throw up their hands and say either “I have achieved as much as I can and I should be happy to be at this point,” or “I give up.I will never be able to speak conversationally again.” Neither of these statements needs to be accepted as a truism.In fact, if an aphasia patient and, perhaps more importantly, their caregiver is determined, committed, energetic, and willing to be patient, there is no reason why a person suffering from aphasia can’t in time reach their New Normal Level of Communication.This will in turn allow the aphasia patient to interact in an understandable manner with those around them as they develop the necessary tools.
When both the aphasia patient and their caregiver reach a point where progress can be seen and measured, it becomes easier to re-discover the virtue of patience and understand the powerful role that aggressive patience plays in the process of continual progress toward your goal.
Free SSAT Treatment Protocol Sample (will be available at aphasiatoolbox.com)
This protocol description is part of the Simply Smart Aphasia Therapy program.
To learn how to make optimal use of any protocol, visit aphasiatoolbox.com
Protocol:Words of Increasing Syllables.This is one of our most versatile and useful protocols; one that facilitates aggressive patient practice. We find it of special importance as there appear to be so few protocols and sets of materials designed to work on the phonological disturbances that so very often are a difficult part of aphasia.”The production of spoken words requires the translation of meaning into sounds” is the opening sentence in a paper by Ruth Herbert and Wendy Best at the 2005 Clinical Aphasiology Conference. We could not agree more.If the patient’s difficulties in accessing and utilizing his/her language’s sound system are not effectively addressed, chances of recovery to new normal levels will be poor.It has been our experience that therapy activities that make use of imitation and external cueing are not effective in remediating this type of problem.The use of well-designed stimulus materials (in this case word lists such as the Increasing Syllable Practice Materials) is absolutely crucial.
The patient will self-generate verbally out loud (say), from his/her verbal working memory, a series of three words that increase in length from one, to two, to three syllables in length.Each of these stimuli words are real words.These words may maintain root meaning and may vary derivationally (please, pleasing, pleasingly) or may change root meaning (rash, ration, rational). [This is also an excellent exercise for English as a Second Language clients, apraxic and dysarthric patients, and those with phonological aphasia].This protocol uses the Increasing Syllable Practice Materials and the Increasing Syllable Demonstration Videos on aphasiatoolbox.com.
Targeted Mental Processes:
Syllabification (awareness of syllable structure, rhythm and count); lexeme activation; lexical to phonological area interaction (feed forward – feed backward); task focus to task shift; verbal working memory; turn taking; truly listening; phonological access and assembly, phonological memory and retrieval; using prosody to facilitate word flow; phonological judgment and discrimination; improved co-articulation awareness and skills.
Easy Step-By-Step Directions (in parenthesis is what the patient actually says out loud):
The caregiver/therapy assistant/speech therapist says the first word in normal speech pattern at a moderate rate with normal prosodic (pitch, intonation, melody) features.The caregiver/therapy assistant/speech therapist encourages any production; at first accepting and supporting the patient’s use of self-generated attempts and gradually shifting the patient toward more normal prosody and rhythm . Use a hand gesture if necessary to ensure a pause in the patient’s response (“please”).
The patient says the first, 1-syllable word aloud after mentally rehearsing (in order to facilitate use of new normal pathway and avoid overuse of imitative/repetitious pathway) (“please”)
The caregiver/therapy assistant/speech therapist says the second word in normal speech pattern; moderate rate with normal prosodic features.(“pleasing”)
The patient says the second, 2-syllable word aloud after mentally rehearsing (in order to facilitate use of new normal pathway and avoid overuse of imitative/repetitious pathway) (“pleasing”)
The caregiver/therapy assistant/speech therapist says the third word in normal speech pattern; moderate rate with normal prosodic features. (“pleasingly”)
The patient says the third, 3-syllabel word aloud after mentally rehearsing (in order to facilitate use of new normal pathway and avoid overuse of imitative/repetitious pathway) (“pleasingly”)
The caregiver/therapy assistant/speech therapist advances this saying the first two words increasing demands on the patient’s verbal memory. (“please, pleasing”)
The patient says the first two words aloud after mentally rehearsing. (“please, pleasing”)
The caregiver/therapy assistant/speech therapist advances this saying all three words increasing demands on the patient’s verbal memory. (“please, pleasing, pleasingly”)
The patient says the fall three words aloud after mentally rehearsing. (“please, pleasing, pleasingly”)
Other tips and suggestions for innovative and helpful use of this protocol will be available at aphasiatoolbox.com.
Horizontal Tweaking:use attention training techniques (; practice from memory; provide printed stimuli; expose one word at a time; encourage independent production; have patient use text reader software for independent say aloud practice and self correction; drill in cumulative cyclical manner;.
Vertical Stepping:work at one and two word level for a while; use in sentences or phrases; stimuli can be increased to four syllable words (in; increase, increasing, increasingly).
“Let us then be up and doing, with a heart for any fate; still achieving, still pursuing, learn to labor and to wait.”Henry Wadsworth Longfellow.Henry Wadsworth Longfellow is one of the greatest poets and writers in American Literature.Though not read very much anymore other than in English Literature classes, he was a literary giant of his time.Our quote of the month expresses at once the joy of working toward a worthy goal and the patience necessary to achieve it.It is important to be patient in working toward a New Normal Level of Communication for the person with aphasia, but it is important to be aggressive and hardworking in your patience.
Will you dare to work with aggressive patience to be an aphasia plateau buster?
At the Aphasia Center of Innovative Treatment, we continue to make progress in the design and development of our website, aphasiatoolbox.com. We are at the stage where we are actively loading protocols, materials, and videos. We are also finalizing the administrative backend of our website so that, hopefully, all on-line and behind-the-scenes procedures will work flawlessly.Stay tuned.
Bill Connor’s Scheduled Public Events
The monthly meeting of the Aphasia Support Group of Western PA will be held with a focus on the multiple reasons why physical activity and training are so important for people with aphasia (and all of us actually).Several experts will discuss innovative and effective physical/occupational therapy and physical exercise training.Several members and caregivers will discuss how continued effort and smart exercise have helped them move beyond what was expected of them.The meeting location has yet to be determined.
Sat. 2/03/07 11:30 a.m.-1:00 p.m.
Bill Connors, Chuck Hobbs, ACIT’s Director of Operations, and Joe Miller, ACIT's Director of Information Technology, will lead the second meeting of the Pittsburgh Aphasia Information Technology Club.The meeting location has yet to be determined.The goal of the group is to share, teach and create ideas about how information technology may assist our efforts in improving the speech and communication skills of people with aphasia and its related reading, writing and speech problems. The first meeting’s focus was on the identification and utilization of innovative technological resources. Numerous resources, tips and ideas were discussed and disseminated. Minutes of the first meeting will be available at www.aphasiatoolbox.com.
August 17 and 18, 2007:
Bill will present at The Stroke Survivors Association of Ottawa’s second Stroke Recovery Conference at the Hampton Inn and ConferenceCenter in Ottawa, Canada http://www.strokeconference.ca/. The conference highlights best practice and management of stroke in the community by featuring talks by leading researchers as part of the ongoing effort to empower people with stroke and their families to manage better.
We Want To Hear From You
To nominate a support group for our “Support Group of the Month,” simply send us the name of the group, some background information, and contact information to: firstname.lastname@example.org.
We select a Patient of the Month from among the members of our Support Group of the Month.To nominate a Patient of the Month, simply send the information to: email@example.com.
The National Aphasia AssociationAs you know, technology surrounds us and changes by the second. There are many people with aphasia, caregivers and professionals who now rely on communicating via the internet. Below is a listing of aphasia blogs, online support groups and therapy programs.